Direito do Paciente: fundamentos teóricos do novo ramo jurídico

  • Aline Albuquerque Universidade de Brasilia
Palabras clave: Paciente, Derechos Humanos, Ciudado centrado, Vulnerabilidad, Participación, Direitos Humanos, Vulnerabilidade, Participaçao, Patient, Human Rights, Care centredness, Vulnerability, Participation

Resumen

O reconhecimento de que as pessoas detêm direitos específicos quando se encontravam sob cuidados em saúde, os denominados direitos dos pacientes, data de momento recente da história, a despeito dos inúmeros abusos ocorridos, ao longo do tempo. Este artigo parte do entendimento de que o Direito do Paciente se constitui enquanto ramo autônomo jurídico que se alicerça em três fundamentos teóricos: o Cuidado Centrado no Paciente, a vulnerabilidade acrescida do paciente a sua participação. Essas três abordagens encontram ampla aceitação no campo da saúde, sendo objeto de estudos ao longo do tempo. Trata-se de pesquisa teórica que tem como objetivo desenvolver aportes teóricos que confiram justificativa para o novo ramo jurídico, o Direito do Paciente. Conclui-se que o Direito do Paciente é um novo ramo alicerçado em construtos teóricos interdisciplinares, o que demonstra a sua riqueza teórico-prática e abertura para a complexidade do encontro clínico.

Biografía del autor/a

Aline Albuquerque, Universidade de Brasilia

Profesora de Bioética de la Universidade de Brasilia. Pós doctorado en Derechos Humanos. Doctorado en Ciencias de la Salud. Coordinadora del Observatorio de Derechos del Paciente del Programa de Bioética de la Universidad del Brasília

Citas

• Adom D, Hussein Ek, Agyem JA. Theoretical and Conceptual Framework: Mandatory Ingredients of a Quality Research. [Internet]. [citado em 5 abr. 2022]. Disponível em: https://www.worldwidejournals.com/international-journal-of-scientific-research-(IJSR)/article/theoretical-and-conceptual-framework-mandatory-ingredients-of-a-quality-research/MTM5NDE=/?is=1

• Albuquerque, Aline. (2020). Manual de Direito do Paciente. Belo Horizonte: CEI.

• Albuquerque, Aline. Paranhos, Denise. (2010). Direitos humanos dos pacientes e vulnerabilidade: o paciente idoso à luz da jurisprudência da Corte Europeia de Direitos Humanos. Quaestio Iuris, 10, 4.

• Andorno, Roberto. Is Vulnerability the Foundation of Human Rights. In: Masferrer, A.; Sánchez, E. Garcia (eds.). (2016). Human Dignity of the Vulnerable in the Age of Rights. Londres: Springer.

• Angel, Sanne. (2020). Mutual vulnerability of patients and nurses contextualised by a broader understanding of the phenomenon. Nordisk sygeplejeforskning, 139 – 144.

• Australian Commission on Safety and Quality in Healthcare. (2011). Patient-centred care: improving quality and safety through partnerships with patients and consumers.

• Berwick, Donald D. Video Transcript: Defining Quality: Aiming for a Better Health Care System. Disponível em: http://www.ihi.org/Documents/OpenSchoolCourseTranscripts/QI101-Lesson3-Transcript1LONG.htm.

• Blume, Stuart. (2017). In search of experiential knowledge. The European Journal of Social Science Research, 30, 1, p. 91-103.

• Braillon, Alain; Taiebi, Françoise. (2020). Practicing “Reflective listening” is a mandatory prerequisite for empathy. Patient Education and Counseling, p.1866-1867.

• Brickley, Bryce et al. (2021). Putting patients first: development of a patient advocate and general practioner-informed model of patient-centred care. BMC Health Services Research, 21, 261.

• Butler, Judith. (2015). Quadros de Guerra: quando a vida é passível de luto: São Paulo: Civilização Brasileira.

• Charlton, James I. (2000). Nothing about us without us: Disability Oppression and Empowerment. Berkeley: University of California.

• Chu, Larry F et al. (2016). “Nothing about us without us”—patient partnership in medical conferences. BMJ.

• Churchill, Larry R.; Fanning, Joseph B.; Schenck, David. (2014). What Patients Teach. Nova Iorque: Oxford.

• Delgado, Janet. (2021). Vulnerability as a key concept in relational patient-centred professionalism. Medicine, Health Care and Philosophy, 24, p. 155-172.

• Demarco, Joanna; Nystrom, Meg. (2020). The importance of Health Literacy in Patient Education. Journal of Consumer Health on the Internet, 14, 1, p. 1-8.

• Dumez, Vicent; Pomey, Marie-Pascale. From Medical Paternalism to Care Partnerships: A Logical Evolution Over Several Decades. In: (2019). Pomey, Marie-Pascale; Denis, Jean-Louis; Dumez, Vicent (eds.) Patient Engagement. Cham: Springer, p. 10.

• Eklund, Jakob Håkansson et al. (2019). Patient Education and Counseling, Same same or different? A review of reviews of person-centred and patient-centred care, 1, p. 3-11.

• Epstein, Ronald et al. (2017). Why the Nation Needs a Policy Push on Patient-Centered Health Care. Health Affairs,29, 8, p. 1489-1495.

• Gusmano, Michael K.; Maschke, Karen J.; Solomon, Mildred Z. (2019). Patient-Centered Care, Yes; Patients As Consumers, No. Health Affairs, 38, 3, p. 368–373.

• Halabi, I. Ortiz et al. (2019). “Patient Participation” and related concepts: A scoping review on their dimensional composition. Patient Education and Counselling.

• Hansson, Sven Ove; Froding, Barbro. (2021). Ethical conflicts in patient-centred care. Clinical Ethics, 16, 2, 2021, p. 55–66.

• Hearn, Jasmine et al. (2016). Patient-centered medical education: A proposed definition. Medical Teacher.

• Herring, Jonathan. (2016). Vulnerable adults and the law. Oxford: Oxford University Press.

• Herring, Jonathan. (2016). Health as Vulnerability: Interdependence and Relationality. The New Bioethics, 22, 1, p. 18-32.

• Hojat, Mohammadreza. (2016). Empathy in health professions education and patient care. London: Springer.

• Institute of Medicine. Committee on Quality of Health Care in America. (2001). Crossing the Quality Chasm: A New Health System for the 21st Century. Washington: National Academies Press.

• Jeffrey, David. (2020). Empathy-Based Ethics: A Way to Practice Humane Medicine. Londres: Palgrave Macmillan Cham.

• Lobont, Florin; Mladin, Ionut. (2018). Philosophical-Ethical Alleviation of Perceptive Experience of Corporeality in Terminally Ill Sufferers. Applied Ethics: From Bioethics to Environmental Ethics.

• Longtin, Yves et al. (2010). Patient Participation: Current Knowledge and Applicability to Patient Safety. Mayo Clin Proc., 85, 1, p. 53-62.

• Magrì, Elisa. (2019). Empathy, Respect, and Vulnerability International. Journal of Philosophical Studies.

• National Health Service. Developing patient centred care. Disponível em: https://www.england.nhs.uk/integrated-care-pioneers/resources/patient-care/. Acesso em: 2 jun. 2022.

• Noordman, J. et al. (2019). Training residents in patient-centred communication and empathy: evaluation from patients, observers, and residents. BMC Medical Education, 19, 128.

• Organizing Academic Research Papers: Theoretical Framework. Disponível em: https://library.sacredheart.edu/c.php?g=29803&p=185919.

• Palumbo, Rocco; Annarumma, Carmela. (2016). Empowering organizations to empower patients: An organizational health literacy approach. International Journal of Healthcare Management, 11, 2.

• Russell, Grant. (2022). Have we forgotten the moral justification for patient-centred care? BMJ Qual Saf., 31, p. 172–174.

• Siouta, Eleni; Olsson, Ulf. (2020). Patient Centeredness from a Perspective of History of the Present: A Genealogical Analysis. Global Qualitative Nursing Research, 7, p. 1-10.

• Smit, Dorian et al. (2020). An exploration of the conditions for deploying self-management strategies: a qualitative study of experiential knowledge in depression. BMC Psychiatry, 20, 210.

• Souliotis, Kyriakos et al. (2018), Assessing Patient Organization Participation in Health Policy: A Comparative Study in France and Italy. Int J Health Policy Manag, 7, 1, p. 48-58.

• Sullivan, Mark. (2017).The Patient as Agent of Health and Health Care. Oxford: Oxford.

• Zelmer, Jennifer. (2019). Healthcare Policy, 14, 4, p. 6-9.

Publicado
2022-12-15
Cómo citar
Albuquerque, A. (2022). Direito do Paciente: fundamentos teóricos do novo ramo jurídico. Revista Derecho Y Salud | Universidad Blas Pascal, 6(7), 47-63. https://doi.org/10.37767/2591-3476(2022)03